Ahmedabad: CIMS Multi Super Specialty Hospital, Ahmedabad in association with Sankalp India Foundation has performed 150 Paediatric Bone Marrow Transplants helping change the lives of many thalassemia major children and their families.
Thalassemia is one of the most prevalent blood disorders in the world. In India, more than 10,000 thalassemia major children are born every year. The only curative treatment for thalassemia is bone marrow transplant from a Human Leukocyte Antigens (HLA) matching donor.
CIMS Hospital and Sankalp India Foundation came together to establish the BMT unit in 2017 as a step in the direction of making India thalassemia-free.
“Sankalp India Foundation takes care of patient preparedness, financial and personnel planning, whereas CIMS Multi Super Specialty Hospital, Ahmedabad provides essential clinical services and infrastructure as a part of the philanthropic collaboration. We are pleased to inform that we have helped 150 children and their families with this initiative. Also there is a waiting list of 80 more children and we are working on their treatment plan. We aim to help many more children get rid of thalassemia and lead a healthy and happy life,” said Dr. Deepa Trivedi, Programme Director, Sankalp CIMS Multi Super Specialty Hospital, Ahmedabad Paediatric BMT Unit.
129 patients, with a median age of 8.6 years, have been offered a fully matched related donor transplant with an overall survival of 96% . 21 patients with a median age of 8.1 years have been offered partially matched related donor transplant.
Dr. Lawrence Faulkner, Medical Director, Sankalp India Foundation and Cure2Children, said, “Completing 150 transplants has unquestionably been a major achievement by the whole team. Even more importantly, these outstanding outcomes have been obtained at a fraction of the cost as compared to western centres. I am not aware of any centre globally that has performed better in terms of value delivery to patients and their families.”
The subsidized cost of one bone marrow transplant is around Rs. 9 lakh for a fully matched related donor transplant, and Rs. 14 lakh for a partially matched donor transplant. The children’s families pay around 30-35% of the cost, the Gujarat government provides 25%, and the rest 40-45% is raised by Sankalp India Foundation through donations.
HLA matching is the first investigation before planning a bone marrow transplant for thalassemia patients. To date, the Sankalp CIMS Multi Super Specialty Hospital Paediatric Bone Marrow Transplant Unit has offered HLA typing to more than 1,000 families.
“The Sankalp – IMS Paediatric Bone Marrow Transplant Unit aims to do more transplants in the coming years and also take up transplants for other conditions like Severe Aplastic Anaemia in the near future.. “, says Dr. Amit Chitaliya, Senior Paediatric Critical Care – CIMS.